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Failure to cope with autism

02 Jul, 2008 01:57 PM
MORE than 50per cent of the state's autistic children live in south-west Sydney, Federal Government statistics show.

Stories from parents highlight how bad it is high divorce rates and constant battles with services and education exacerbate the problems.

Bianca and Ed Sames have two daughters who suffer from mild and moderate autism.

``There aren't enough services out here,'' Mrs Sames said. ``I was running two support groups in the area but I can't get work as I can't get anyone to take my daughter as the local preschool won't take her.''

Mrs Sames, who volunteers with the Autism Advisory Support Service and Families in Partnership, said the stories of parents have shocked her.

``One family I met took their child to the doctor and the doctor said: `If he was a dog you would put him down','' she said.

``I hear so many people who are standing in a line and their child is screaming and other people just say to them `would you shut your child up' or `sort your child out'.

``People don't understand you say to them the child is autistic and people look at you with a blank stare.''

The figures and constant dealings with local cases prompted Werriwa MP Chris Hayes to call for a specialised child-care centre for autistic children to be located in the area.

At last year's federal election, the ALP announced it would build six specialist centres across the country, and Mr Hayes said south-west Sydney, should have a chance of getting one.

Mr Hayes recently told Parliament about people he regularly deals with, including a staff member with an autistic daughter.

``Many of my local constituents who are parents of kids with autism have told me that existing services do not seem to cater for their kids' special needs,'' he said. ``When it comes to autism we're talking of the need for early detection and early intervention.

``Tragically, the south-west of Sydney has a great percentage of people who suffer from autism.''

He moved that the House recognise early diagnosis and intervention as essentials, support a policy to establish specialised child care and early intervention services and consider a centre be established in south-west Sydney.

Last week the Government announced a $190million package so all children aged6 and under who are diagnosed with an autism spectrum disorder and are not at school will have access to up to $12,000 over two years with early intervention.

Macarthur MP Pat Farmer said the ALP had resurrected a Liberal policy from last year but said Mr Hayes needed to get money for Mater Dei, Mary Brooksbank and Beverley Park.

``If Chris Hayes was really fair dinkum about this he would be saying these schools are where we need to get the money into,'' he said.

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Date: Newest first | Oldest first
One family I met took their child to the doctor and the doctor said: `If he was a dog you would put him down','' she said. This is outrageous! I hope this doctor was reported to the medical board! He/She shouldn't have the PRIVILEGE of treating autistic children!
Posted by Storkdok, 3/07/2008 6:08:19 AM
Many families who have a child who has a disability face a similar situation to Bianca with either the lack of local services or the capacity of services being streched to the limit with increasing demands. The general community needs to become more aware of the diversity within our community - I'm not just talking cultural diversity, but the diversity of people witha range of abilities, needs and aspirations. Carers of children who have autism often face thet ask of justifying their childs behaviour when out in public, when all that is needed is understanding and support about what is really going on in the child's life. Families in Partnership look forward to the recently announce funding packages for children who have autism to reach families so they can undertake the vital early intervention programs with their child. And yes Pat we do need money for the special schools in our area, as well as for all schools, so that children who have adisability can participate equally within our education system. Lets all work towards an inclusive society that welcomes diversity in all its richness.
Posted by Bob Lester, 3/07/2008 11:54:44 AM
Not real happy with Pat Farmers response.... maybe if he was fair dinkum he might visit an early intervention service or two and to see the ground the services are doing for autistic child. Its better to intervene before a child gets to school Pat, do your homework.
Posted by Bronnie, 15/07/2008 9:54:50 PM

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More services, please: Chris Hayes, Adelina Sevathiane and Bianca Sames (rear from left) with Jayden Kumar, 5, and Taylor Sames, 3, who both have autism.Picture: Wesley Lonergan
More services, please: Chris Hayes, Adelina Sevathiane and Bianca Sames (rear from left) with Jayden Kumar, 5, and Taylor Sames, 3, who both have autism.Picture: Wesley Lonergan

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